Monday, February 8, 2010

IF IF IF...sick of the word IF.

Hello all, I know you have missed me this weekend. I thought about writing a post about nothing in particular but that's boring so I just waited until I could write about some good stuff!! I hope you all enjoyed your weekend, did some partying and hopefully didn't worry about me! :)

I had a good one, I was able to work on Saturday (made it thru the day) and then spent Superbowl at Mom and Dad's house for a great Superbowl party. It was a lot of fun and it was a nice distraction.

Today my meeting with Dr. Schriber went good. At first I wasn't sure why I was there and I don't think he knew why I was there either. He usually doesn't see people until after remission or after they relapse so to see me so early was a little odd. But, we go on and chat and discuss this and that. Finally the light bulb went on and I was there because I have T cell Lymphoma, not B cell. That puts me at a high risk and typically with most T cell cancer patients they give you a bone marrow transplant following chemotherapy (and once I'm in remission). It is still possible I won't have to go this route, but we discussed IF I had too...

Basically there is a large chance, almost a guarantee that with a bone marrow transplant I will be cured. I would like to think so if I was to endure this 4-6 month process. Yikes! Without going into too many details because it's still a "maybe" 3-4 weeks of that would be hospitalization. Wowzers. I am pretty sure though I would come out of it cured and basically a new person. That's the positive! The negative is of course I think I would be at my absolute low during this time. Kind of scary, but the end result is great.

There are still too many unknowns that have to be answered before they will decide if this is for me and I think I will find out on Friday when I go back to seeing Dr. Nabong. I got my 3 tests scheduled for this week. I have my MUGA scan and my bone marrow biopsy on Wednesday (back-to-back) starting bright and early at 6:15am. Then, I have my PET scan on Thursday at 7am. Everything has been ordered STAT so the results of everything will be in by the time I have my 1pm meeting on Friday. Yippee!

The best part of the day was when I finally got some drugs. Those of you who know me well know I don't like to take things unless I absolutely need them. Well, I am in a TON of pain today and he could see it and asked Nabong if they could start me on something. THANK GOODNESS. So, I've taken 2 of my 3 pills (I can't take one until the morning) so hopefully I will feel some relief!

The other interesting thing is that my brother Ryan will be tested to see if he's a bone marrow match for me. Nobody else. Only siblings can be matches(of my immediate family). We have a 1 in 4 shot so he will just have to get a blood test here soon.

He also thinks I'm at a Stage 2. I asked why not Stage 1 and Stage 1 is if only 1 lymph node has been infected...well, I obviously have more than 1 so that's why I'm at Stage 2. The PET scan will tell us for sure.

My Mom may go into more detail with her email that she sounds out to peeps but I figured why bore you with the details of this bone marrow transplant if it doesn't pertain to me. So, maybe if I get the word then I can tell you more...but right now, just keep your fingers crossed that everything comes back clean this week with my tests!!

Other than being in a little pain, hobbling around like an old lady, I feel great. I am still super overwhelmed with everything and the amount of support I have and the emails I have gotten, but it just goes to show me that I truly am blessed. It's unbelievable and I love every person in my life. Thank you all for your continued support. It means the world...

Till Wed!

E

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